Apparently, this week is De-Lurking Week, where lurkers are asked to just at least say "hi" on your blog. I thought I'd try it, and ask you all to say a "hello!" if you are a lurker. If you don't want me or the internet world to know your email address, feel free to use a fake one, I don't care. You can just try [email protected] or something like that.
I will also take this opportunity to apologize to those who have left me comments and emails. I do read them all, but I am a TERRIBLE commentor/reply-er. I usually comment out loud when I read them. I'm all "Aaaw, that's so sweet of her." or "Oh, she's hilarious!" But then I can't seem to have the time or discipline to respond to them all.
Anyhoo, say "hi!" if you are so inclined. It will fill me with warm fuzzies!
Hi there, I adore your blog..you are a much stronger woman than I'll ever be. I love reading about life with your adorable baby boys.
Posted by: cubbiegirl | January 11, 2006 at 06:30 AM
Just saying hi from NYC, where I live and work and have zero children. I've been reading your blog regularly for a few months, and keep coming back because it has a great one-two punch: an interesting story (I love hearing about the different ways that people have of living their lives) and an excellent voice for telling it (frank and unsentimental and positive). I get a lot out of it, so thanks.
Posted by: JGT | January 11, 2006 at 09:25 AM
Hello from Missouri! Don't remember where I surfed in from originally, but I've been reading your blog for around 5 months.
Posted by: Amy T | January 11, 2006 at 03:29 PM
Hello from California. I don't know how I originally arrived at your blog but I am now a devoted reader. I love the stories and the pictures of the boys. I am anxiously awaiting to hear how D is doing - sending him positive thoughts. It would be fun to read a blog post from him too - if he is so inclined. Take care.
Posted by: Alexandra | January 11, 2006 at 03:55 PM
Officially delurking! I've been reading for a least a few months, off and on. I love your wry humor and I wish there were more people who could write as honestly and sensibly about how people with disabilities are treated and should be treated in society.
P.S. I LOVE the Buttectomy story!
Posted by: Chris | January 12, 2006 at 12:23 PM
Sliding by in the last minutes of Delurking Week to say hi and that I read all the time.
Posted by: bri | January 13, 2006 at 03:06 PM
I followed a link to your blog from the "disability blogs roundup #11" post at http://disstud.blogspot.com/
I'm ever so engrossed, and after reading a few posts by category, I'm catching up chronologically. :)
I love your writing style, progressive, self-determination/advocacy perspectives, and tellin' it like it is. And, may I say, your disability pride shows through quite well.
I have invisible disabilities (like some of yours) and enjoy the peek into your life as a new mom. I do want child(ren) some day and am 6 months shy of 30. I hope I find the energy and determination to make it work, like you have.
Incidentally, I'm also a premie (shout out to all you premies out there), and at least some of my chronic/impairment stuff seems to stem from life-saving care I got in the NICU. I tried to do an internet search to find info about now-adult premies, but most of the info I found was for parents of current newborns and said stuff like premies have lower IQs. Ummm, riiiight. You sure it wasn't the poverty, racism, possible addictions, and inadequate access to healthcare, developmentally stimuling and educational environments, etc etc etc? I'm here to tell you there are *gifted* premies.
I do wonder about the overstimulation aspect. I have fibromyalgia, as does my mom (who was not a premie). Yup, good ol' "irritable everyting syndrome" means my overstimulation threshold is often much lower than most people's - a common premie trait. Interesting.
Also, I think I was part of the first round of premies whose doctors knew to sheild the eyes from pure oxygen and ears from machinery noise, or I could have been deafblind, too.
So, anyway, nice to meet you... most of the deafblind people I know are culturally Deaf / culturally Deafblind ASL users. Enjoy reading your blog, expanding my awareness about yet another one of the many ways to be a deafblind person.
Keep up the good work. Looking forward to reading more of your blog.
Posted by: meb | June 25, 2006 at 01:26 AM