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May 07, 2008

You People Are Keeping Me Up At Night

I am going to write a post regarding disabled kids and therapies/interventions. It is a hard topic, but I'll note right off the bat that I never indicated that children with disabilities should NOT receive therapy. But more thoughts on that later.

Okay, so this email I got a week or so ago, and my attempts to ignore it have not worked. Its not that I think the question is so wrong or that it made me angry or anything like that, it is just a touchy subject. But it is keeping me awake tonight so I guess I'll give it a go.

From "thebeck":

...I have spent the past few days going through your archive. Your weblog is sucking me in and I am enthralled with your story. I may be splitting hairs, but there is one thing you said that I just don't understand and can't get my head around. You talked about a horrible day that was something you just needed to get over in your post about the song "Ordinary World" being your theme song. And I assumed you were referring to your rape incident that you wrote about just a few posts before that. And you said that the song's line about "ours is just a little sorrowed talk" was meant to somehow minimize or diminish the crime. And you should just get over it. This is none of my business, but I'm confused about this. I found your site actually searching for "date rape" because my girlfriend was also raped in college. And she would go ballistic on me if I said that she should just get over it or that it was just a little sorrowed talk compared to the problems of the world. I guess I'm asking, how can two people with similar experiences think about it in such completely opposite ways?

...

Okay, first of all, I am very sorry about what happened to your girlfriend and please extend my sympathies.

And now, second of all, whoa, whoa, whoa. Hold on for a second while I pry apart the pretzel that is my brain and go back and find out what in God's name I said. (This actually took awhile.) He (I'm going to assume you are a he) is referring to this silly throw away post that you'se all weren't supposed to read that I am so going to take down now.

I say this:

I will continue to use "Ordinary World," which has become my cheesy summer anthem, as my rubber band around my wrist to snap when I get stuck in a forloop and need reminding to just get on with it.

and this:

"... forgiveness is a verb that you have to actively decide to do, it doesn't just come along and fall into your lap by itself via osmosis. Many years ago on a Thursday no less, we had an awful day, and that is what it was, an awful day. We can still remember S while getting on with it. "Ours is just a little sorrowed talk."


In reference to these lyrics:

Papers in the roadside
Tell of suffering and greed
Here today, forgot tomorrow
Ooh, here besides the news
Of holy war and holy need
Ours is just a little sorrowed talk


in this song:

Ordinary World


Okay, first of all, you are wrong about that being about what you think it is about. "We can still remember S" does not refer at all to the TCGRS (Typical College Girl Rape Scenario) experience that I wrote about. Actually, I can find where I wrote a bit about it after that post, but not previous to it. So either you read my posts backwards or I did write about it before and I can't find it now. Anyway. "S" is something I can't talk about here. Because it involves other people than me, and I was only on the periphery of the "S" situation so it is not my story to tell. But, it does involve a crime and loss and grieving, and that, coupled with my experiences around the TCGRS of my own, leads me to want to tell you these things:

No two people are going to handle being victims of a crime the same way. And there is no wrong way to handle it. If your girlfriend is telling you she can't get over it, she can't forgive, and that it is a big deal...guess what? She's right. You didn't say how long ago her experience occurred. I will tell you that my TCGRS was 19 years ago. My involvement in the "S" situation? Started 29 years ago. That makes a helluva big difference as to where you are in the process of grieving and getting over it. I'm going to guess that her crime took place within the last few years? But even if I'm wrong, who am I to say how anyone else should handle their own situation. Everyone is different.

What I meant by "Ordinary World" being my theme song involves how you can be going along, minding your own business, going down your own life's path with 19 or 29 years distance between you and a traumatic incident. And something can come along and totally blindside you, knocking you off your path and back to where you were  decades ago. It happens  to the best of us. It happened to me, and it happened to my friend, A, last summer. And how you have to drag yourself back to your chosen road, your ordinary world, before it gets all out of hand.  You can call this flashbacks or post traumatic stress or triggering or whatever. But when you have this issue, you have to develop your "drag yourself back to where you want to be" muscle. And this can take years to develop. And you can think you are so far beyond all that crap and guess what? You're not. So, out comes the muscle. Lift a few weights with it and get it back in shape. Have a little rubber-band around your wrist to help you if necessary, a theme song, whatever works, and you will get back there. If your girlfriend has issues like these, she may have not developed this muscle yet. Or she may just handle these things differently than me. Maybe she just is still and lets it all pass through her. Maybe she gets really angry. Maybe she needs to relive it for a while. Whatever. I hope she finds a way to find some kind of effective way to live with it. Whatever way she finds, it is the right one for her.

What I meant by "ours is just a little sorrowed talk" is that we (A and I, not anyone else) are so far removed from it. And we worked hard to get here. So every once in a while, we can have our little sad time flashback thingy, but that's it. We do our thing and then we are done. It is not our lives, it does not define us, it is just something we need to get "tuned-up" every few years or so. We talk to each other, have our little sorrowed talk about it, do a little emotional maintenance, and then we get back to our lives. This is our thing. Doesn't need to be anyone else's. And the whole "holy war and holy need" thing is that our discussions always end up talking about the bigger picture. Why is there so much violence and need in the world? Why is there a need to dominate and hate? Why so much hate against women...the supposed "weaker" sex? What is the definition of evil and is there good in everyone or are some people just evil? And if so, why? How did they get that way? Is it innate or environmental? What can be done to help good win out over evil?

These questions of the ages are where our conversations always seem to end up. And these are issues that are far bigger than what happened to A or what happened to me. We are, unfortunately, just little insignificant dots in the bigger world problem of violence and oppression. Which doesn't mean that our experiences are insignificant, just that unfortunately, we are only two people who have been victimized by crime in a sea of millions and millions throughout history since the dawn of time. For us, and I'm not talking about anyone else here, in a weird way it helps to think that the problem is universal. Not that we, A and myself, were somehow targeted because of something implicit about who we are. That we've done something wrong. It is just saying, look. domination and oppression and violence looms large in our world. This happened to us, but it is so not about us. This is bigger than us and there is nothing we could have done. The only thing we can do now is stay in our chosen "Ordinary World." This is the world of good over evil and kindness over violence. That's all we can do.

Boyfriends of rape victims can either be class A assholes (and if that is your choice, you should probably just gracefully back out) or can be fundamental in recovery. I am EXTREMELY lucky* to have really only ever had experience with the latter type of guy. Even the relationships that didn't work out for whatever reason were actually really cool about this issue. If you want to be one of the good guys and do the right thing; take a step back, learn about rape and its ramifications, get help from a victim's advocate or counselor, do whatever it takes to be supportive. You can click to RAINN (Rape, Abuse, and Incest National Network and they can offer information and refer you to confidential hot-lines, counselors and victim's advocates in your area.

*D notes that my extreme luck has more to do with my infamously extreme screening process. I once got picked up for a first date from work. Not five blocks away the guy says that he can't "sleep with a girl without SLEEPING with a girl." I got out of the car at the next intersection, walked back to my office, and announced to my coworker, "date's over!"











December 02, 2007

HHHHMMMMPPPPPIIIIIIIIAAAAAAAAAAAHGHGHGH!!!!!

I've been practicing (as usual, sigh) keeping my big mouth shut and not having to spew every. single. opinion. I have all over the place and just make nice, polite small talk. It is a deal I've made with D to practice for a potential social event that I know will be tough. This might ruin me.

Okay. So I'm hanging in there. But I just need to say this to no one in particular (of course) before smoke rises uncontrollably from my orifices:

Yes. I do believe there are very real threats to our national security. Yes, I do believe there are people who want to hurt us. Yes, I do think there is a need for a strategy to protect ourselves.

That being said, this bullshit where because A is guilty of something that makes B blameless is chickenshit, kindergarten ideology. Try to hike yourself up a few more rungs on Kohlberg's ladder of moral development for me and follow along.

You can't protect our human rights by torturing people.

You can't fight for democracy by occupying and oppressing people.

You can't support people's freedom of speech by spying on them.

You can't protect your own religious freedom by persecuting others for their beliefs.

You can't claim due process and then falsely imprison people.

I could go on...But its as my dude Jacob would say, "You can't hide guns in the temple and expect the enemy not to bomb the alter."

You can't fight for these things that you value unless you act worthy of having them. With all rights come responsibilities.

What the "enemy" does or doesn't do is not as  important as what you do. You need to be worthy of your own beliefs and values.

Are we perfect? No. But that doesn't mean you can write yourself a blank check--an IOU against morality because we are 'at war' or because things are tough. And act like when its all over, when all of our enemies are gone, THEN we will shape up and get back on the freedom/ human rights/ democracy bandwagon again. When its easy. When all of our enemies are obliterated. You can't control people in the name of your own freedom and act like when its all safe, then you will live up to your ideals. The ideals are most important to stand up for when its the hardest to do it and when you are at the greatest risk for doing so. Its lazy ass shit to only act your best when in the best circumstances. You don't get a free pass to be an asshole just because there is a threat. That is when it is most important to not be an asshole.

You will always have way less enemies when they see you acting worthy of your own stated case.

GAAAAAAAAAWWWWWWWDDDDD. Don't be such a pansy-ass.

There.

Here. I found this very old song that always calms me down.

That's better. G'nite.

November 06, 2007

Progress, and a rantastical late night tangent of some sort.

Oh, how I love you people who live in my computer. Thanks for all of your suggestions regarding Aaron the Hurricane, and for making me laugh about it all! I think what I really needed was to take a step back and let someone else think about it for a while. There have been no major disasters the last few days. (Well, except for the destruction of a cute little growth chart I had just hung up, and hadn't even written any of the heights on yet. But, it was only a three buck thing, so...whatever.)

I have taken a bit of all of your advice. First, I went baby proofing crazy. I got a gate that is quite large and goes across our kitchen entry way. I can't leave it there because otherwise D could not get past my garage door, but it helps for when I am sleeping. Next, I got these things that make it hard to open our lever door knobs. We put lever door knobs on the house so that D would have an easier time opening the doors, and now of course, like all the things we did to make it easier for D, also makes it easier for toddlers so its biting me in the ass. We have a pantry door that has been a huge problem area. Naim has already figured out the baby proofing thing on that door knob, but he is a little more crafty mechanically speaking than Aaron, so hopefully he won't spill the secret. In any case, it makes it harder and takes longer to open the door, so it may buy me 30 extra seconds when peeing.

Also, the sticky tape suggestion is a good one. I haven't tried it yet, but Aaron always likes to have something in his hands. I did recently give him a small foam cow that is made out of the squishy stuff that those foam stress balls are made out of. He liked that a lot, that is until he decapitated it and amputated its legs (leaving little bits of foam cow gut every where.) Stuff like that horrifies me. I think killing the toy animals will lead to killing the cat and then becoming a wife beater and then graduating to a serial killer. But D just laughs and says that when he was little he wanted to take everything apart and see the inside and figure out how it worked and what it was made out of. So, lets hope it is just his scientific mind at work on his varied experiments.

I have tried giving him things to destroy, but it is something that really has to be supervised and isolated. Leaving him with a "destruction corner" does not bode well. He really doesn't understand the difference between what is okay to destroy and what isn't. It is all so confusing, isn't it? I tell him not to rip the books, but I really don't care if he rips old catalogs and we even rip paper on purpose for certain art projects. Consistent rules are harder than you think when thinking in two year old terms.

I think the advice that really resonated with me and was what I needed to hear was Linda's, who told me that her twin girls either clean up the mess or sit. Well she said it better than that. But I think I have been really lax about that and I am finally getting on the stick, no exceptions. One problem is that Aaron would sit while Naim gladly cleaned everything up, but then I actually started assigning Aaron specific jobs or sections of the room that I don't let Naim touch. So that, and organizing the day a bit better so there is always something exciting around the next turn, if the mess is cleaned up, has helped a lot. My GOD it takes a ton of energy to get that kid going sometimes, though.

I think Alfie Kohn really screwed me up some this year. You may remember that I read his book, Unconditional Parenting, early in the year. (Here is what I blathered about it, then.) It has been reinforced by a family in my church covenant group, who are very pro-alfie. That's fine for them, and I still think he has a lot of good points, but when it comes right down to it, I cannot get on that bandwagon wholeheartedly. At least not as an Alfie "purist." And I think I've felt a bit guilty about that. To me, it is a matter of respect. If I am going to, as Kohn suggests, respect my kids and treat them as I would adults, then I expect the respect in return. Well, not literally. I do understand that 2 year-olds do not have the maturity to show respect the same way as adults. If my little kid hits me, or destroys property or whatever, sure...try to figure out why. See what you can do to support him and understand him. Don't withhold your love or acceptance. But the bottom line is, He is not going to hit me or anyone else. And his is going to know that in no uncertain terms and there will be consequences, just like there would be if he was an adult. (My kids in general don't hit, push or bite, but we did have a bit of a play-kicking problem briefly.) Point being, I still get to have boundaries. I still get to draw the line. I am not these kids' sacrificial servant to be tread upon just because I am the "mother" (cue angel halo music) and I am putting their needs before my own. I have seen people who have kids that are disrespectful to them by hitting, destroying things, whatever, and they go up and give them a hug and try to understand unconditionally why the kid is acting this way. Well, sometimes there is a legitimate underlying reason that needs to be examined. But at two, many times the reason is BECAUSE THEY CAN. You all are right. He destroys things because it is fun. Because he wants to see what will happen. Because it is the bees knees to be able to make your room rain goldfish crackers or picture book confetti. So, as I would not put up with this type of thing with adults (as Kohn says I am supposed to be respecting my kids in like ways) WHY would I accept this from my kid? So, I am not going to drop kick him out of the second story window, and I am not going to stop loving him, but I also am not going to put up with this crap anymore.

So, along with some schedule adjusting and baby proofing, its hard-ass mom who makes her kid help clean every horrid mess before doing anything else is the plan.

All this brings me to a related topic that I have been thinking on for a while. Despite our current challenges, I don't think of Aaron as the "bad twin." I bring this up because it doesn't seem like my father and sister can stop comparing my twins. It is so easy to fall into that pattern with twins especially. I understand Aaron, because in a lot of ways, he is like me. He is extremely independent and knows what he wants. He is very diligent and focused on something he is interested in and hard to pull away. He knows what he wants and he is not happy about being told otherwise. I get Aaron because in many ways, I was him. And I don't want the family dynamic that I had to put up with to happen to them.

Naim is dependable. Naim helps me get through my day sometimes. I can have him do little things for me. Run errands and fetch things for me. When I need to pay the clerk at the store, I know Naim will stay with me, while I have to keep my eye on Aaron so he doesn't run off. Naim is usually fun, while Aaron is moody. Naim is mostly smooth sailing, while Aaron is guaranteed to bump heads with me many times a day. It would be very easy to call Naim "the good twin" and my "favorite." But I recognize that just because Naim is (right now at least) easy to parent, doesn't really mean all that much about who he or Aaron really are. Naim's behavior just happens to be more compatible with my lifestyle right now. This is more of a coincidence that a great virtuous character that Naim has vs. a moral breakdown of Aaron.

I'm going off on this because I don't want them labeled like I was. I was the bad kid. My sister was the good kid. Now, I did get into some minor trouble growing up. I had a truancy problem. My grades were mediocre. I could be slow and distractable when my parents wanted something done. My sister was probably very easy to parent. She studied hard and got good grades. She was never in a lick of trouble. She was the model of efficiency around the house. I can see how her personality was probably more compatible with my mother's. The traits she had lined up with the ones my mother valued. The good traits I had were and still are not valued. And the problems I was having were supposedly just because I was lazy, irresponsible, the bad kid, wrong. I could have used a little Alfie Kohn. I could have used someone to really try to help me examine the underlying causes of my mediocre grades and truancy. (I now see a lot of it having to do with my disability issues that were almost virtually ignored if not denied by my parents. I mean, why show up for math class if no one, for 12 years, cares whether or not you learn or could even see and hear to learn. Easier to call you stupid and lazy.)

Even now, my main title is "the person who can't get up in the morning." Being an early riser is next to godliness in my family. It is the answer to all problems. It is the character trait that shows how hard working and ambitious you are. My circadian rhythms were always off. I was never, and will never be, an early riser. I can do it if I have to, but my natural biorhythms won't get there naturally. It is only by force. In general, I have about 5 times more energy at night than in the first 4 to 5 hours in the morning. And it really doesn't matter when I fall asleep or wake up. Anyway, and I'm just going off on a little peeve right now, I have been lectured this week (and my whole life) about how if I would ONLY get up earlier all my problems would be solved. Aaron wouldn't destroy things, I would be able to exercise more, the angels would sing, and pennies of gold would fall from the sky each morning, if I could only get up earlier.

My kids go to bed at 9:00. What other 2 year olds do that? And the reasons are many. One is due to my work schedule with D and his visitation schedule with us. If the kids are up that late, they get maximum opportunity to be with dad. And the other is because generally they will then sleep till 8 or 9 o'clock. So that means I get maximum use of their in bed hours when my energy is high, and then can get maximum amounts of sleep before they get up. The hours between 9-midnight are the only ONLY hours I have to myself. And that is when I can get things done. Writing, working, extra housework and laundry, whatever. When my dad comes to visit, things sometimes get a bit screwy because he gets up at 6 or 7 and is not at all respectful of the rest of us who are sleeping. I don't hear it because I'm deaf, but the kids do. He turns on the TV loud. He turns on his computer, he is loud in the kitchen and manages to make very burnt smelling toast that fills the house every single morning. He opens the garage door and slams the doors. The kids wake up early, and if they don't come get me, they end up just wandering around the house. (Its not like he is going to watch them or play with them or feed them.) So then I have to get up earlier, and the kids get grumpy earlier and fall asleep during dinner. I don't like it, it makes for rushed and grumpy mornings for us all. When he isn't here, Naim usually comes into my room and gets in bed with me about 8:30. Aaron gets up and comes in but moves out fast and plays around. Yes, this is one of the many destructive periods that I've baby proofed and rearranged for. But after about 15 minutes, Naim and I are ready to get up and then we quietly go downstairs and have breakfast and get dressed and start our day.

It works for us. It doesn't have to work for anyone else. It doesn't really affect anyone else. I used to work flex time from 10-6 and others came in from 7 to 3. Guess what? It worked for me. It didn't really affect anyone else. So after 37 years, you'd think they would be mature enough and a bit less self absorbed enough to understand that it is NONE OF THEIR BUSINESS. I have heard about this my entire life, and most annoyingly since I've had kids. It was always, what are you going to do when the babies wake up early and need to be fed? And what are you going to do when the kids get out of cribs and wake up early? And oh my god, if you didn't sleep so late your life would be so wonderful and all of your problems would be solved. You'd think I had a major heroin habit the way they talk about it.

Anyway, this is just one of many things I have been labeled as over the years. And why I try so hard to reject whatever labeling my family or others do with Naim and Aaron. It can be such a self-fulfilling prophecy. It can keep you from figuring out how to really problem solve a challenge you have in life because you just assume that it is because you are stupid, lazy, bad, wrong, irresponsible, a night owl, worthless, or whatever else they tell you that you can't control, rather that being supported in having the ability to find causes and solutions for problems. How nice it would have been for someone, somewhere, to care enough and sit down with me and have enough faith in me to help me figure out what exactly was going on with me at school and what could be done about it instead of writing me off as stupid and lazy.

I was telling my sister about the 30 year old rule I have. Unless you were significantly abused, you can no longer blame your family for your current flaws after the age of 30. And I really don't. I am me and I have to deal with my own stuff and my parents did the best they knew how to at the time. So this isn't about that. This is about learning from your mistakes. They are off the hook in regards to me. It is water under the bridge and all is forgiven. However, I'll be damned if I'm going to let them do the exact same shit to my kids.

Part of the problem is that they can't change their behavior unless they admit there is something that needs changing. Both D and I have discussed this. Perhaps it is generational. Our parents have done some extremely hurtful things to us. And perhaps they didn't mean to, but they did. And we are supposed to make ammends and apologize profusely for whatever transgressions we have done, but they never, ever will. And what would be so nice, what would make it all so much better, is if they could just admit that, hey, I did the best I could--but what I did there obviously didn't work out the way I wanted it too, and I was wrong and I'm sorry. I will try not to do something like that again. And both of us would be like, OK, wonderful. Thanks so much for caring enough about us above and beyond having to preserve your ego. But it will never happen. D's father, to his credit, is a very good listener and even though I disagree with a lot of his opinions, he does make an effort to see our side of things and will apologize to us (and accept our apologies) when we have had disagreements in the past. But my family and D's mother? We have to accept that it ain't gonna ever happen and just move on.

But when you have kids, where do you draw the line? Where do you say that the behavior your family members are exhibiting are not acceptable to you as a parent? Its not like cut and dry physical abuse. It is just like a large degree of lack of respect. MIL has already taken care of that for us by just ignoring us altogether. (Even though she and D still talk occasionally, he says he just nods while she talks about herself and he doesn't really get in to his life or his family with her.) But my dad is a harder problem. He does some things that are easy for me to ignore because I am used to it and just space it off, but that D finds absolutely disrespectful and abhorant. D is afraid that when the kids get older and understand more and are affected by it more, it is going to cause major problems. He says I am so much more relaxed and happy and a much more fun and better mom during the months when my dad isn't here. And I feel it too, sometimes. How much of this is going to rub off on the kids?

My dad is good with the kids in some ways. I go back and forth between thinking it is great to have an intergenerational household to thinking I'm screwing up their lives with this living arrangement.

Aaron will probably get past this destructive phase in a week or a month or a year. Will my family still be talking about how he wrecks everything when he is 37? Will he, with all of his wonderful qualities, be made to feel like the black sheep? He will probably always be strong-willed, but instead of using that to his advantage, will he always be made to feel like a failure for it? And Naim, who is easy to parent but obsesses over the vacuum cleaner and order and routine (highly valued in my family, but I worry about it making life hard for him to be that inflexible, so I try to curb it while they root it on)--will he become so pressured by the expectation of perfection that he will not take any risks and miss out on all of the vast colorfulness of life? I know I can't shield them from everything and everyone who doesn't respect their humanity in the same way I think they deserve, but how far do I need to go to save them from this which made much of my childhood miserable and took years to move on from? Or am I just worrying over nothing, and my family will not have near the influence over them as the positive roles of D and I and our other friends and their friends that they will meet along the way? Aaron's destructiveness is so easy. Parenting is hard.

I am going to have to change the category on this post because it meandered out of control into the field of cheap therapy and sanity questioning. Sorry, folks. I wrote this in about 40 minutes and that's too fast even for me. I became incoherent somewhere along the 85th paragraph.

October 12, 2007

Neurosis

Update: Problem solved thanks to the (and I mean this entirely platonically) hottie that is D's friend, Jason. Alas! D did the asking for me. That's what he's for, to act as my interface with the outside world. So, now, shelves are upstairs, D has entry to the casa, and I will be spending some time tomorrow organizing and this thing will be done!!

I have a terrible, horrible problem asking for help. It is beyond the beyond. I am so ridiculously independent that I make people uncomfortable sometimes, especially some women. I go to great lengths to be able to do things on my own, even when any normal individual would not ever go to such lengths and thus look upon me as if I'm out of my mind. When I think back to how I packed and moved all of my own crap as well as a ton of D's crap by myself while 7 months pregnant with twins, I am just embarrassed at the stupidity of it. But I must do something wrong. I worked up for weeks to asking the church for help to move, and when I did, I got nothing. No help. No help during D's hospitalizations, no help during my blindness and early pg days. Well, that's not fair because I never really asked for help again after the moving help request was ignored. Every time I ask for help, it seems to turn to disaster. Once I asked a friend if he would drive me to the skating rink a couple times a month if I decided to move into this apartment that was a ways a way from the rink. He agreed (he was going there himself anyway), and then he got all weird about it. After a few weeks, he decided he didn't want to do it anymore. ("I feel like your entire skating career depends on me." he says. Well, yeah. If you call 2 trips a month a career.) I'm really not sure what my problem is. Maybe I do it in such a way that is probably totally off-putting. I bargain with people, offer things in return, negotiate, make sure they have an out and know that if they can't do it, I surely have 18 other resources of which I can call upon. Or, I could just do it myself.

But even if I do it wrong, on some level, I just don't get it. I am willing to help others and I do help others an awful lot. Although often times I am helping others who are admittedly not in a position to help me in return. I'm fine with this, but it gives me less time to help others who could help me in return. I'm willing to work with people's schedules/needs/boundries and try to be really respectful of that. I know that sometimes people may really want to help but because of their own life circumstances or whatever, they can't. I am fine with that, too. I hope that when I ask people for help, they don't feel obligated and feel like they can say no if they can't help. I don't want them to feel like they "have" to help me because I am disabled. I want them to want to help me because I am their friend and they know that I would do whatever I could to help them as well. Because we mutually care about each other.

It is really bad to have this problem while disabled. But I think disability is at least in part, the cause of it. People are REALLY WEIRD about helping you when you are disabled. They don't want to be drug in to what they think will be a nonreciprocating relationship. Or, they go overboard to help you but the price you pay is that they put themselves in the position of being your rescuer and your reason for surviving. I thought I was getting over this until the whole in-law thing happened. I was loosening up about it around them finally, and then suddenly they laid it out for me. They had been resenting putting my dishes in the dishwasher and taking out my trash occasionally while we were all in the hospital or visiting our dying mothers, but they did it because, well...how could I have SURVIVED without them? And then, the gall I had to become pregnant after all they'd done? Well, they weren't going to be raising MY children. It was a complete backfire.

I have this silly situation now where there is no way around my asking for help. I'm ridiculously hyper-stressed about it. The thought of asking for help for this is starting to make me sick to my stomach. I'm being ridiculous. But the fact that there is no way around asking for help here and there is no way to do it myself is literally driving me into anxiety ridden insanity. You know that getting the kid's room together project that I have been whining about all summer that is now going on it's SIXTH GODDAMNED MONTH? It has been a real test of how much I could do with two kids, no car and no muscle. My dad has helped some and D has as well, but I've done most of it myself. So much so that I must have looked like a total ass while trying to get my kids, myself and big, huge items I bought on the bus. I have dragged things up and down my stairs one stair at a time, many times getting down on my butt so I could push things with my huge massive speed-skating man-legs instead of my wimpy arms. I have given huge amounts of stuff to a foster mom because she was willing to come and get it and I knew I couldn't get things mailed myself if I sold them on ebay. (I don't feel bad about giving the stuff to her, I'm glad she has it. But figuring out how to get rid of the kids car seats and other big items by myself with no car literally stressed me out for weeks.)

I'm so close to the end of this stupid project that I can taste the victory. But wouldn't you know it? I have a new glitch that could extend it for even more weeks. Except for the beds, I bought the rest of the kids' new furniture off of an educational supply store auction. I got a lot of really solid furniture for cheap. Yes, it looks like a kindergarten room, but in a cute way. And with things like real student desks and a great laminate table, that will adjust in height as they grow up and are virtually indestructible by small active and messy boys. Compared to buying new furniture from an actual furniture store, I saved thousands of dollars. (I tried to figure out used furniture,  but the logistics of getting to and bringing home furniture was near impossible so it was really out of the question.) I really like the stuff, and the kids like it as well so far.

Anyway, so I had the garage sales and I sold bedroom furniture and I gave stuff away and I rented a carpet cleaner and spent backbreaking hours steam cleaning my carpet and I (well, my dad helped significantly here) painted the kids room and put the beds together and drug desks around the city and got on a first-name basis with the UPS guy who brought new sheets and comforters and everything else. The only thing left was some form of storage. The kids toys and all of their stuff has been strewn about the upstairs for forever now. I have had nothing to store stuff in in their rooms.

Then I got these great Jonti-craft shelves at auction. There are four of them. Two little ones with doors and two big open bookcase style shelves. And they have wheels! And the big ones have Write-n-wipe backs! I am in LOVE with these shelves. They are solid wood and sturdy and have some super strong finish on them where you can even wipe off crayon and paint. They will more than hold all the kids stuff. They can move around and each of the kids can have their own for their own space when they get older and happy, happy, joy, joy.

But you can see where this is going.

Actually, I lucked out. A nice guy from the educational supply store had a huge freight shipment he was going to take to a nearby school. And he said he would drop my stuff to my house as well. Big headache relieved there. And I'm very grateful to him for doing this. The cost to freight it myself would have not been worth it. So, I didn't know how much he was willing to do, but I at least thought he would help bring them into my house. I even had some cash ready to see if I could bribe him tip him for helping me carry them up the stairs, but I knew this might not be workable. So, he comes and tells me he has no time and he says he will put the stuff in my garage. Fine. I say. At least I got it this far. I'll figure out the rest later.

Well, he had my stuff all wrapped up vertically on a pallet. (Is that what you call them? The fork lift platformy things?) This thing was about 8 feet high and the pallet itself, much bigger than the surface area of the shelves, was about 4 feet by four feet. He plopped it in the middle of my garage and left.

So this was over a week ago, and now D can't get into my house, and I can't get out of my house easily with the stroller. I have to take the stroller out the front and down 5 steps. That's not a big deal, but D not being able to come over is a big deal. I do attendant things for him when he comes, not to mention feed him, and he watches the kids for me. I have had no D at my house for over a week. Just me and the kids for that many days alone every evening is driving me a bit batty.

I could back my dad's car out of the garage, but I can't put it back in myself without risking vehicular or bodily harm. Besides the fact that that would piss my dad off. I've taken the top two shelves down, but I still can't move the fucking pallet, even with my huge massive speed-skater man-like legs.

Isn't this a ridiculous predicament? Aren't I being silly?

I HAVE asked a couple of people for help. Both seem to have flaked out on me. I'm not sure why ( or even if they've really flaked out because they don't want to do it or just because they don't realize the "severity" of my fragile sanity about D not being able to get into my house.) They could come through, or not. Can't people just commit? It would be like, 20 minutes of helping me. The things actually ROLL. So, it is only up the steps that I can't do myself. Either say you can do it, or not. Is that so hard? I'm willing to work around schedules, I'm willing to make it a fun day and get beer and pizza or whatever. I'm willing to do it at two in the morning if that is what it takes.

Why is this so hard and why is this driving me batshit crazy?

Because, with this 20 minutes of help and an hour of my own time organizing things, this room project could be done. D could come over and watch the fucking little hyenas darling boys so I could have a moments peace. I could make food and have an actual adult eat it with actual adult dinner conversation. I could get all the miscellaneous toys and crap out of every orifice in the upstairs. And I could actually feel like someone out there cares about me/us enough to want to take 20 minutes to help us. I could MOVE ON WITH MY LIFE!

(All you people who compliment me and tell me how amazing I am, thank you, but you knew I had to crack at some point, didn't you? This might be the some point. I know I'm being irrationally bonkers about stupid shelves.)

So, now, I have my church covenant group on Saturday. There are two big, strong burly men there that may or may not be willing to help me. I have no idea. I'm completely afraid to ask and so probably won't.

Another churchy option is that my director of religious education (who by the way, is the exception to the church rule and has gone out of her way to help me at times) had emailed us to see if we needed any help during D's upcoming surgery in November. (No big deal, he is getting his infusion pump replaced.) Well, no. Not really then. But I could email her and say, thanks...we are fine for the surgery but do you know anyone who would be willing to haul some shit out of my garage and up a flight of stairs? She knows everything about everyone, so she might have a better idea than me about who would be willing/able to help. She is out of town now, so I have a few days to work up my nerve on that one.

Oh! And once I saw on Craigslist a guy who would drive me (not me personally, a female) to Ikea, buy me $200 worth of Ikea junk, deliver it for me and assemble it in exchange for my gratitude. So, how much gratitude do you think I'd have to offer up to get a guy to make a few hefty trips up my stairs? I mean, I'm not saying he has to pay $200 for the shelves or anything.

Still, probably more gratitude than I'm willing to provide. I guess I need to suck it up and get over myself and figure this stupid thing out.

HELP! (There. Did that work?)

July 02, 2007

For the Record

Often people email me and ask if they can copy/link to/quote some part of my writing on this blog. And I never answer them because basically I'm a lazy slacker sometimes who can't seem to answer all my emails (but I do read and appreciate them all, even when you tell me I suck). So here is my blanket policy on the subject of my copy rights.

Basically, yeah. Go ahead. I reserve the copyright on all my writing. However, you may link/quote/copy me as long as you give me credit. The best way to give me credit is simply by linking back to the actual post you are grabbing, rather than just a general link to the site. In this way, people who want to investigate further and read more of whatever crazy ideas I've come up with and argue with me about how stupid I am or tell me how great I am can do so with an informed critique because they have had an opportunity to read the blurb in context.

So, that, and don't use my writing for profit without my permission. That's it, go crazy and spread my incomparable, sage-like wisdom throughout the land. In short, some rights reserved...but not that many.

July 21, 2006

A Terribly Long Rant Concerning Housework That Will Probably Drive You to Shoot Your Computer Screen Out After The Third Paragraph

So, I have a topic I am going to just throw out there. This may sound crazy, but maybe you folks who live inside my computer have some insight.

Can you be addicted to cleaning? I'm not talking about the usual OCD type of thing where you wash your hands 100 times because you fear germs. I'm talking about making cleaning the center, top priority thing in your life. Is this an addiction in the same vain as an alcohol addiction?

I think we all suffer from addiction. Some people are more susceptible than others and some addictions are more dangerous than others. I am probably a bit too addicted to the Internet, and despite my very decent diet and regular gym visits, I am easily 30 lbs overweight entirely due to my addiction to chocolate. But when does a bad habit become an addiction and is there such thing as a good addiction? I'm thinking a habit becomes an addiction when it causes harm to you or others and despite this you don't stop. For example, I do believe I could cut down on my Internet usage by just putting my mind to it and setting a time limit, perhaps with a sticky note on the screen. I have total confidence that I could do that. And right now, I don't think my Internet usage is really a problem for anyone, except that I could be reading more good books or something instead. I mean, I'm not on the nets when I could be spending time with the kids or anything. Chocolate is more complicated. It would be really, really hard to give that up. And it probably does cause harm to my health. Cutting down some is a reasonable goal, though.

Okay, so back to cleaning. (And by the way, we are totally NOT talking about me here, as many people can attest to.) Cleaning is good, right? It is much better than a heroin addiction, of course. Is it a little personality quirk or is it a major problem? I'm actually starting to think that cleaning obsession runs in my family. Naim is a cleaner and an organizer. Right now it is really cute and all. And every night about 5 minutes before we get ready to go to bed, I sing our little "time to clean up" song and he gets all excited and runs around and puts away his toys. And I say, "thank you, Naim!" And that is that. But sometimes, I worry that he isn't playing and relaxing and having fun as much as he is waiting for me to tell him it is time to clean up, and trying to clean up every time Aaron takes a toy out. So I've drastically de-emphasized cleaning for him, and don't even mention it until the end of the day. I've also let toy clutter go a few days on purpose so he knows we all won't die because of it. This has improved things drastically over just a few weeks. He plays more now. He is more creative in his play. He is starting to pay attention to books and words more. He seems to have less anxiety. And when it is time to clean up, he still likes to do it, but it is more of the five minute thing we do that he gets a "good job" or a "thank you" for, not a big event.

Why I worry is because of my dad and my sister. They are both cleaning freaks. And I realize here that people have different comfort levels about cleanliness. D and his family are more into hording and clutter than I am. And it gets a little irritating at times, but when D and I lived together we were able to come to compromises about the level of clutter.

I am not a neat freak, yet I like things orderly. But not at the expense of living life. I have some kind of long and psychotic history with cleaning. When I was a kid, we cleaned every Saturday Morning. We divvied up the house and cleaned. My cleaning was never good enough. Was this a blindness thing or a youngest kid thing or was I just too incompetent to clean? I was never sure. But I hated it, hated it, hated it. And procrastinated like crazy.

When I was in high school, I worked at Taco Bell. I had help getting the job from a voc rehab counselor for the visually impaired named Nancy. Part of my job at TacBell was to clean the dishes, the floors, etc. I was so nervous that I was going to do a bad job that I took forever to clean and the boss was always saying, hurry up! Finally, she called up Nancy and asked if she could teach me to clean faster. Nancy, my boss and I spent a couple of days at Taco Bell together working on cleaning. Basically, Nancy taught me some of the blindness techniques for cleaning, which aren't anything too technical, mostly common sense stuff. Make an imaginary grid, start at the left hand corner and work your way down to the right when cleaning floors. Feel things as well as look at them. Stuff like that that was already known to me. But what I remember about this is that I was doing everything they said, yet I would go back and do it over and over because I would feel just one more bit of dust on the floor, or just one more smudge in the sink. The problem wasn't my cleaning technique or blindness, it was my over-eggsaturated expectations for myself. They both told me that there is no possible way in the universe to get something perfectly clean, and that I needed to get in, do the job quickly, get done and not worry about it being perfect. Everybody has stray dust on their floor after they clean. Well, this was news to me. My problem was that I was trying to clean too well, not that I wasn't cleaning good enough.

So, my cleaning issues continued through college. I was very inconsistent. I would try to be so perfect and when I couldn't maintain that, I would just say, "fuck it" and the place would end up a dump. Then, I would be so overwhelmed by it that I would get depressed and just stop living the rest of my life until I got everything cleaned up. I would skip class to clean, I would skip out on socialization, on just  being outdoors. I would punish myself by cleaning obsessively for a few days.

Some of my friends in college started to notice that they couldn't just drop by without me cleaning my house first. And that I would say I couldn't do stuff because I had to clean my apartment. Once after finals, some friends came by unexpectedly to invite me somewhere and the house was messy and I said I couldn't go, I had to clean the house. And they were like, "You aren't serious, are you?" And I was so embarrassed about them seeing my messy apartment, which, was mostly books and laundry and dishes piling up. I'm not talking like, mold infested crust on the walls or anything like that. My friends were like, "Lisa, shut up. Nobody cares. Just come out with us tonight and clean it tomorrow. Shit. We'll come over and help you." And so they did, and we got it done in like an hour or so, and we kind of talked about it and joked around about it, and they couldn't believe the ideas I had about cleaning and how I was so ruled by it sometimes. They were kind of shocked at some of the stories I told them about how we were raised and how so much of the value in my family was placed on how well you could do housework.

I also started to notice at this time how comfortable some of my friends' families houses were even with some clutter and dirt around. I didn't care and it was actually relaxing to be there. Their parents valued things like their children's compassion, music abilities, their community service, their cooking interests, whatever. They even made good hearted jokes about their kid's messy room. Housework was a distant priority that they just did when needed like watering the lawn or taking a shower. It was maintenance, not the center of things.

So, I'm making this too cut and dry. My upbringing was not as simple and whacked out about housework as I feel like I'm making it out to be. But it was definitely a bazaar element of my childhood that I had to shed and get over.

So, it honestly took several years, but finally I figured out the place that housework needed to have in my life. It is kind of like brushing your teeth. You've got to do it, but you want to make it as small and insignificant part of your life as possible and not get too caught up with it. It is just maintenance for god's sakes. It is not something that you have to put too  much thought or energy into. And it certainly doesn't have very much to do with your worth as a person. I refused to care if my family thought I was worthless because of housework, of all things. And once I lowered my standards and de-prioritized it, my living space actually was cleaner more of the time. I knew I could take an hour and do a quick cleanup and even though it wasn't perfect, it was good enough.

Okay, people, I know this whole post is just domestic drudgery. You can bail if you want. But here is where I talk about the weirdness that I have dealt with with my family in regards to housework.

I did not spend much time at home from age 17 to age, well, 33 because being at home with my family was not  usually a place where I felt welcomed or like I belonged there. My mom and my sister were a clique that I was not going to ever be accepted into, and my dad usually went along with whatever they said. So, I spent small amounts of time there, and then when the nagging about how I used too many cups or was too fat or had bad hair or the wrong boyfriend or the wrong job or was not disabled enough for this or was too disabled for that or I had too much laundry or I took too long of showers got to be too much for me to give a shit about, I bailed. Much of what I was nagged about was issues around housecleaning.

I always thought that this was just a difference in personality traits. We were like "the odd couple" and our different levels of clutter tolerance were just at odds to each other. So be it. They can have their perfectly clean and non-cluttered houses and I can visit and then live my life as I see fit elsewhere.

Until the year my mother had cancer and I spent several months at home. You know how, when a crisis happens people talk about how the little, petty stuff just falls away and seems so unimportant and thank god we have our health and why were we worrying about spilt milk? This is how I've come to live as a disabled person. With D and others I've cared for, I've had to live with real messes like leaking bodily fluids and clumsiness that causes messes (including my own) and having to put function over form for accessibility's sake and how to NEVER taken health or life for granted and make like petty shit like housework was all that important. Well, I expected this to happen when I went home and my mother had terminal cancer.

It didn't happen. The pettiness actually got worse.

The very first night I was home, my mother dropped a glass and it shattered all over the kitchen floor. My mother dropped it because the tumor was causing brain damage and she was loosing functioning in her left side faster than she could keep up with it. It was my first day back, my mom was scheduled for major brain surgery in just a few days, and my sister went berserk over a broken glass. She ran around like a drama queen screaming and panicking and being over-traumatized by the cleanup. At first, that didn't make me mad. I figured everyone is under a lot of stress, and sometimes little things will cause people to blow up when they wouldn't ordinarily.

It was what happened later that night that put the "twilight zone" tones in my head. My mom had gone to bed. My sister and my dad were talking and she was still going off about that glass breaking. She said something like, "Well, if she can't hold a glass anymore then obviously she should know not to use glass and only drink from plastic. I'm not going to clean up every goddamned glass she drops on the floor." Whoa. Way to prioritize, sis. Way to not have any empathy whatsoever. Way to be sensitive to how bad my mom must be feeling about, oh, I don't know, loosing her brain functioning and DYING.

That wasn't an isolated incident. It got worse and worse. She started cleaning the floor when just a crumb would drop. I'm not talking picking up the crumb with your hands. I'm talking getting the vacuum cleaner out like several times a day. The sicker my mother got, the more my sister wanted to control little things like the housework. My mom even started to complain about it. She would say that the vacuum was on constantly (and I can attest to this) and that she was not getting some of her care-giving needs met until after my sister would get done with some cleaning.

So, she cleans when she's upset. Is that so bad? Why not just let her? Well, fine. Except when cleaning takes precedent over living life. Since at least my teenage years, we have not been able to put up a Christmas tree or have really Thanksgiving Dinner because my sister finds it all not worth the mess. Nothing is worth any kind of mess, because life is about cleaning. I really wanted my mom to have some kind of special day for her last Thanksgiving and Christmas. Nothing that big. Just get a Christmas Tree and get out the old decorations and have the dinner with all the fixin's. I said I would do all the work. All the cooking, all the cleaning, etc. She fought me every step of the way. For thanksgiving, I tried to do a traditional meal but with some shortcuts to appease her. So it was not a whole turkey, gravy from a mix, stuffing from stove top, mashed potatoes from real potatoes, corn from the cob, cranberries from the can, bread from some kind of Pillsbury premade dough, a store bought pie. Not too big of a deal, right? All I heard was complaining about the mess it would make in the kitchen and how it would use too many pots and pans. And then! I committed the huge crime of spilling some of the gravy on the flat glass stove top! Oh, the humanity!

I had this really stupid, stupid fantasy that we would all sit down together to eat this Thanksgiving meal and go around and say something nice and have a nice meal. Well, my sister and my father sat down, ate up the meal in like the first five minutes, and got up and started cleaning the kitchen. My mother and I were left alone for most of the meal by ourselves.

For Christmas, my dad and I went out and bought an artificial tree and spent a day when my sister wasn't there putting up decorations. It is one of my favorite memories of the last years with my mom. We took out old ornaments and decorations that hadn't seen the light of day since my childhood and reminisced. My mother was too tired to help, but she sat with us in the living room and I would hand her the ornaments to look at before I hung them on the tree. I remember my father carefully cradling the tiny baby Jesus from an old nativity scene in his hands and saying something like, "I've got to be careful with the baby Jesus because we need his help this year." It is the closest I've heard my father come to a prayer. We laughed and it was a nice day.

Until my sister came home and bitched about it. I think it was about two weeks before Christmas and every single day that tree was up, I had to hear her complain about it and how it all better be down by December 26th. I told her I would take it down by Dec. 31st for sure. On December 26th, she couldn't wait for me to do it and she took it down very unceremoniously herself, complaining all the way. I said I would make Christmas Dinner as well. Whatever they wanted and I would clean it up. They flat out refused to let me (they can do that because they are my ride to the store in the no public transportation outskirts of Kansas). They compromised to a catered dinner from Albertson's. Fine with me, but the whole talking through the meal about how much easier this was than my cooking and how the turkey was better was not all that festive. Again, mom and I were left in the dust while they packed up the disposable food containers.

Now, I live in my father's house with two active and messy one-year-olds. I have several part-time jobs as sources of income. None are very demanding but still have to keep track and put in the time. And I am a single mom with very little respite in the caregiving of the kids. I have a partner who has had very serious health problems for the last year and has spent several months of it in the hospital and is still looking at an upcoming long term hospitalization. I have a kid with a (hopefully minor) pending seizure problem. I have to spend my time figuring out how to get things done without the convenience of a car. Sure, I like a clean house, but I have bigger fish to fry.

There was a time, when the kids were about three months old and all the newborn help had faded out, where I made myself a schedule that enabled me to get everything done, including the housework. The problem was that I was going from 8:00am to 11:00 pm (with a feeding or two in the night) with absolutely NO break. I'm talking none. LIke maybe ten minutes to grab a lunch or five or so minutes to go to the bathroom. Showers were sometimes optional. So this schedule lasted approximately three weeks until I figured out that I can't live like that. So I had to prioritize. The most easy thing to knock off was the housework. So, that is what went. Not totally, of course. but it became less frequent. Life got better. Life got good. I started to enjoy motherhood, going to the gym, the occasional social function, Sunday school teaching, etc.

Here is my basic housework plan now: Everyday the kids pick up their living room toys before bed. After bed, I clean the kitchen and do a quick sweeper vac of the floor. About twice a week, I pick up their toys in their room. On Mondays, I get the trash together and clean their room and put new sheets on their beds, etc. On usually Sunday nights, I sort of go through the whole house and pick things up and spot clean and vacuum. About once a month (or it may get stretched a bit farther than that) I do a housecleaning week, in which throughout the week, I take an hour there or twenty minutes here to really do some more heavy duty cleaning. Toilets, sinks, showers, hardwoods, mirrors, major dusting where I move stuff, major vacuuming where I move stuff, etc. It does end up taking the whole week of little minutes here and there to complete. I have learned to live with the fact that I cannot have the entire house spotless at the same time. There are days when I get behind and have to deal with it the next day or whatever. This is the best I can do--and we are not living in filth.

Well, this horrifies my father. He comes here and does nothing but bitch at me about cleaning. He cleans the entire downstairs every Saturday morning and I am not allowed to have the kids downstairs until he is done. Fine. But it is all the piddly-ass crap he complains about during the week that gets to me. I am a stacker of dishes in the sink and clean the kitchen all at once at the end of the day. He cleans the kitchen like, 57 times a day. He gets mad at me for cooking. He eats a frozen dinner every night and uses like, one fork and a cup and then throws away his frozen dinner dish. I try to cook balanced meals for D and myself and the kids. (I'd cook for him, too, but he usually doesn't want to eat with us and instead eats his frozen dinner sitting on the couch by himself). I'm not a gourmet cook by any means. I cook relatively quick, easy stuff that takes no more than a half and hour to make. Last night we had Quesadillas, a pasta salad type thing, and honeydew melons. Tonight we had "breakfast at dinner time" and I made sausage, scrambled eggs, french toast and bananas. Usually its an entree, a vegetable, a bread or grain, and a fruit. I try to cook fresh organic, but I also take shortcuts as well. He doesn't eat the same time we do, and then he complains that I've dirtied up his clean kitchen.

Okay, so this is all just domestic tedium, right? We should be able to work this stuff out. It is just housework! I'd be fine with coming to some compromises with him if he could talk about it like a rational adult. He isn't patient enough to sit down and have a tactful negotiation of duties and guidelines. He just wants things his way and despite who owns the house, I insist that everyone in this house has equal needs that need to be considered and worked with. There is no Lord of the Manor here. I refuse to put up with that.

Today I made something in the microwave and when I took it out, I accidentally spilled a little bit of it. I was CLEANING IT UP when he has a shit fit from across the room because he thought it exploded in the microwave. I tried to tell him that I just spilled a bit of it, but he wasn't listening. By the time he figured out that it didn't make a mess in the microwave, he started yelling about something that did leave some spots last week. So I told him I wasn't going to listen to him yell at me like that and went upstairs.

About ten minutes later, I try to go down to patch things up. I went up to him and said, "So, I understand you want me to cover what I make in the microwave so it is easier to clean and doesn't leave a mess." I was going to go on to say, "I'd appreciate it if I'm doing something that is bothering you, you could just come and tell me nicely instead of yelling at me and treating me like an idiot." But I never got that far. He went off before I even finished the first sentence about how the whole place is a mess (its not) and how "Cleanliness is next to Godliness"-- it says so in the Bible. (NOTE: If you want to debate me on an issue, quoting the Bible is usually never a good route to take. I'll be all over that before you even knew what hit you.). When I said that I refused to have petty, disrespectful arguments about housework and that housework is not the center of life. He says, "Well, it should be and it is the top priority." To which I mentioned things like being kind and considerate, loving your family, respecting your daughter, raising children, educating yourself, doing volunteer work, voting, working on a vocation, working on a vacation, sports, taking care of your health, giving to others, arts, crafts, and music, and spiritual growth as maybe just a few examples of things that might be slightly higher priority than housework. But what do I know?

Here is the thing: I'm used to this. I can blow him off and not care about what he said. But he told Naim the other day that he had too many toy dishes out when Naim was play setting the coffee table. He started scolding him to put them back. All night, he kept telling Naim to put stuff back (he was telling Aaron, too, but Aaron couldn't give a crap.) I kept saying that we would take care of it at the end of the night. (My kids are only downstairs playing for about 3 hours in the evening. The rest of the day, my father has the whole living room to himself.) So then, when Naim did pick up all his toys, my dad went goofy telling him he was a good boy and why can't Aaron pick up his toys? (I'm working on Aaron, but he usually averages one or two toys put away a night.)

So, you just know that some day my kids are going to draw on the walls with crayons or something. You know that they are going to trip and fall and knock something gawd-awful onto the carpet. I may give them a stern talking to about the crayons and make them help clean both messes, but I don't want them thinking their self worth is wrapped up in something as dumb as housework and the worshiping of stuff as a higher value than people. I also don't want my kids seeing my dad yell at me all the time. I'm his daughter, the only woman in the house, and the mother of his grandchildren who quite frankly, already does most of the slave waiting on men hand and foot work around here.

So, is cleaning like this a mental illness/addiction of some sort? Is it just a disguised form of control/abuse over people? Can it be "cured"? Have you ever heard of this before or is it perfectly normal and I'm just a lowlife slob?

And what do I do about it? I'm all for just having a calm discussion and working some of these issues out. But I have too much stuff to worry about in my life and D's life to spend more than two iotas of energy arguing about how many spots in the microwave are my fault. Is it worth moving out? He's only here about four to five months out of the year. Can I handle it? Can the kids handle it? How long should I give him to see if this improves?

I ended up going to D's tonight with the kids and cooking dinner over there. Felt like I should let my dad sit alone in his clean house if that is what is important to him. D is gearing up for a skin graft surgery that will probably put him back in the hospital for six weeks or so. But we've already started a very tentative back up plan in case I have to bail. We can pretty easily move into a three bedroom in his building for less money than we are paying now combined. (About the same for me individually). We would lose about 400 square feet combined. There are, of course, pros and cons to staying and going. It isn't a decision I'm going to rush into especially with his health right now. But it was definitely nice to cook dinner (and clean up) in peace an harmony. Even if his kitchen is a bit too cluttered and smallish for my taste. I'd rather deal with tight spaces and respectful quiet family dinners than worrying that every time I get out a new spoon or drop a grain of rice I'm going to get yelled at.

How's that for tedious, boring bloggery? Any advice?

May 02, 2006

I Didn't Spend Three Years Doing Positive Behavioral Support Research for Nothin'

Things are good, though I feel like I've been crabby lately on this blog. D and I are settling back into life. His new attendant seems to be working out well. He has a guy buddy he met in the nursing home (a CNA) that has come over a couple of times to help him out with a few things. I've started back to work for him and we are sort of looking to see what will work out for my new schedule. He's been over for dinner three or four times now.

The new attendant is a 22 year old woman who also works in a nursing home part-time. The state has not approved her yet to work (takes forever) so I told D to let her start and I would claim her hours and then pay her out of my check. Hopefully, I'll get paid. D never got reauthorized since being placed in the nursing home and now he has to re-up for home care again. Never know what they will do to us, but I decided the stress of having her start without her paperwork and possibly having to pay her out of my own pocket was easier than the stress of going on and on and on indefinitely without help for D. So, I cross my fingers that this lovely girl won't bankrupt me. She's doing a great job.

I put D on a point system for following through with seeing the kids. Yeah, these are the rules of engagement when you're married to an over-trained cognitive behaviorist. You'll all probably think this ridiculous, but with D and I sometimes making things really concrete helps. Sometimes when we've had a conflict for a long time it is because we are each missing each other's expectations. He cries the male excuse of "I don't understand what you want from me," And I cry the female whine of desperation, "how many ways can I explain this until I'm blue in the face?" Then he does his mother's fallback defense of going into extremist absolutes: "You mean I can NEVER see my family?" No, that's not what I said. "Oh, so you mean I have to spend EVERY WAKING MOMENT with the kids?" Exasperated sigh.

So we negotiate like we are haggling with each other at a Vietnamese flea market and we come up with A SYSTEM. So here is THE SYSTEM: I'd like him to take the initiative and see the kids at least three times a week. (He will also see the kids another 2-3 times a week when I work for him.) So this would be 12 times a month. So he needs to earn 12 points in a given month. He can see the kids by coming over here, or inviting us over there or doing something out in the world. Doesn't matter to me. If he sees them, he gets a point. If he cancels because of his health, he gets zero. Points are neither added or subtracted. If he has a choice between seeing the kids and spending time doing something else leisurely, like seeing his family, playing around on the computer, seeing friends or whatnot...he loses a point. In this way, he can have the flexibility he needs to do some other things in his free time and seeing his family, but he has a system of prioritizing. Also, if he wants to see his family and the kids and I just aren't available, like if we are at the gym or whatever, he won't be penalized. If he is sick for a long period of time and doesn't earn his 12 points, he can either make up the points later or if it is a particularly bad illness we will just start fresh next month. Visits to the hospital count for points though. If he spends all morning tiring himself out with his family and thus can't make a commitment to the kids in the evening, that is also a lost point. On Sunday, he planned to come over but then he decided to see his brother who was in town for the weekend and who only comes up about 3 or 4 times a year. He called me and told me he was subtracting a point. I'm fine with that as long as he makes up the point sometime this month.

So, this is all done on the honor system. It is not something that I'm going to be vigilantly keeping score of and go around a spy on him or anything. I know this sounds like I'm his mother and I've put him on a sticker chart. But it is more of a clarification of what we both expect. It is more of a guide for him to help him prioritize. To be clear, this isn't an issue of him not wanting to see the kids. He does and he loves them and loves spending time with them. This is an issue of him having trouble with overcommitment and prioritizing his time. Often, someone may invite themselves over to his house and he just knee-jerk says yes and then doesn't have as much time or energy as he thinks he does to see the kids. If he has a concrete system to think about, he may be more thoughtful when making those decisions and be more realistic about what really can be done with the time he has. So, we're giving this a try. I'm sure he curses every behavioral psychology class I ever took, which were way too many.

Speaking of behavioral issues, I've got Aaron on a plan as well. We are working on walking. Aaron is almost 17 months old and has actually made negative progress with walking. I'm not too seriously worried about it, but it's time to give him just a little bit more, uh, encouragement. Aaron was crawling, walking with my assistance, cruising, standing, etc., and moving right along until Naim got to be so driven by walking that he insisted I spend all my time with him to help him learn to walk. I mean, the man was on a mission! So in that time, I'm sorry to say that I think I blew it a little with Aaron and didn't catch him when he was ready to move on. So I blame myself, but I think we can fix it in a few weeks. What happened was, Aaron did this unusual crawl/scoot whenever he pushed around his cars. He sort of scoots on his butt with one hand and one leg propelling him forward. We call it a crab crawl. He used to only do it occasionally, but now he does it constantly. He now has one very muscular leg and one weak leg. So, I think he feels unbalanced and has all but stopped wanting to walk or stand much at all. I've been looking in my old physical therapy stuff from college and have found a few exercises that we do, and then two or three times a day, I get hugely animated and excited and try to get him to walk with my assistance for even just a few steps before he collapses back into his crab crawl. He's already made some small improvements. We go to the pediatrician on the 16th, and I'm going to see what he thinks. I'd love to have a real physical therapist see him and give me some ideas.

So, now that I've worked out a plan for D and for Aaron, I need to start one for myself. I'm having a bit of an identity crisis, I think. Not to be over dramatic about it, but I'm realizing that at the same time I became a mother, I lost my guide dog of eleven years. I miss my dog, of course. And may get a new one when the kids are older, but I think the problem is that people are treating me so differently without her and I'm just not used to that. And to sort that out with the new role as mother and the criticism I've gotten about that. I've just been so grouchy and on the defensive with everything. I need to stop that.

About motherhood, I'm going through all the common growing pains that a lot of women go through. There is the grieving of your old life. The isolation of being stuck at home with two infants who need you every second, etc. On top of that, I've had a LOT of criticism from, really, just a very few people about my choice to have children. There was an incident in the hospital with the OB nurses that I'll tell you about sometime, there was a few snide remarks from passersby in the public when I was 'showing' that really don't mean squat to me. And there was D's mother, brother and sister-in-law. That's it. In their minds, I think I was maybe TOO disabled to have children. The vast majority of people have been very supportive of all of us and kind and happy for us. I need to concentrate on that.

Then, with children and moving, I met a whole slew of new people who never knew me as a guide dog wielding, single working girl deaf blind woman. It seems I can tell people I am hearing/visually impaired, but without my guide dog, I lose my street cred. Or something. I use a white cane and hearing aids and an FM amplification system, but I can still walk around a familiar place (like the church) unassisted. They don't get me. It seems like I can see, but yet, I have lousy eye contact, I miss things, I can't tell who some people are by sight unless I really, really know them. (Don't know the people at church that well, yet.) So, I have all these apparently odd behaviors, but they don't associate it with my disability. They just think I'm rude or weird or something. With my guide dog, I got some disability consideration. Without her, I get weird looks.

It seems like a lot of my conversations at church are a struggle. I have this nit about nametags. I understand that they are helpful to people, but not to me. So people always know who I am and I don't know who they are. I also forget my nametag all the time. I lose it, or whatever and never have it on. I don't think I do this on purpose, but maybe it is fruedian. So people go, "You don't have your NAMETAG!" And I'm like, "Oh, I know. I'm sorry. My name is Lisa. And you are...?" And then they point to their nametag. And then I joke, "You know, I'm visually impaired. I can't see it unless you want me to get a little too close!" And then, swear to Gawd, they pick up their nametag, still pinned on their shirt and pull it away from their shirt the few inches it will go and hold it out to me. "Heh. Nope. Still can't read it. Maybe you could just TELL ME YOUR NAME."  And then sometimes they laugh and other times they get all embarrassed on me and bolt to the nearest exit. It's hilarious. I can't tell you how many times I've gone through this exact conversation.

But when I talk about disability issues, they don't see me as disabled so they don't even know why I'm talking about it. They don't think I'm disabled ENOUGH. Funny thing is, my vision and hearing are worse now than when I had my guide dog. But I've been acting like it is obvious I'm disabled and its not. People just don't seem to warm to me like they did when they understood I was visually impaired. (Or was it all the cute dog and that we would listen to their 47 million dog stories?) I think people think that everyone who is blind is totally blind and they only give guide dogs to the totally blind. That just isn't true. My dog also helped me with a ton of social, auditory cues and I just don't have that anymore. I could tell when someone was approaching from behind and if we knew them or not just by how she reacted. I swear it's like my arms have been cut off.

But I just don't have enough arms to get another one right now. The kids need to be walking well and following directions before I can get another one.

By the way, in a really unfortunate twist of events, I was unable to meet with my minister to discuss some of these issues. A few days before our meeting, he was in a car accident and was seriously injured. I'm not sure the extent of his injuries, but I was really sad about it and wrote him a letter offering rehabilitation information if he needed it. It sounds like his recovery will be quite extensive. So, I've just put all my business on the back burner for now. I'm not really sure what to do with it, so I'll just try to do my best to show up and be as involved as I can in church stuff until I feel like it is the right time to bring it up again.

But I think I need to give myself time to adjust to my new veneer as a nonguidedog person and I guess just really try to be patient and explain my disability more to people (without being annoying about it???) and not assume that they get it or remember after one mention.

April 14, 2006

Sick

Kids have had fevers but no other symptoms the last couple of weeks on and off. It started when we started going to the gym/daycare, so I guess they caught it there. The other day, I was feeling just a little sick and the kids were snotting up a storm. Temps in the 103.5 range. I finally decided to take them to the doctor/nurse practitioner. Strep. Antibiotics.

I didn't sleep at all last night and just got sicker and sicker. Canceled with the minister today and rescheduled. I have that kind of sick where I'm in a dizzy haze and can't think in complete sentences. I feel like shit but I think the kids are getting better. Does anyone know if I have to get on antibiotics as well to avoid just giving it back to the kids? Or can my body just get over it? I'm really not wanting to drag my own self to a doctor right now. If it was just me, I wouldn't go at all, but don't want to drag it out for all of us.

One of the absolute worse things about being a single parent is being sick, having your kids be sick, and having to take care of the whole lot of you without a bit of respite or help. It sucks, sucks, sucks.

I rarely drink soda and never have it in my house very much. But I always crave diet coke when I'm sick and have a sore throat. Didn't want to go our and get any so I ordered a pizza and three 2 liters of diet coke to be delivered. Didn't even want the pizza, just wanted the coke. Then almost slept through the guy coming to my door to deliver it. But I got my coke which made me a bit happier.

Kids and I slept from about 1:30-6:00. then I got them up to medicate them and get them some dinner. All of us went back to bed about 8:30. I just got up here for a bit because I was having a coughing attack and got some tea, then back to bed for me. Kids are still sleeping well.

Aaron seems to be in a good enough mood but hates it when I wipe his nose. Poor Naim will just drop to the floor and cry and want to be held a lot. I just want to drop to the floor and cry and want to be held a lot, too!

Gawd-awful day today. Hopefully tomorrow will be better.

January 28, 2006

Brain Dump

Here are the things I need to do in life in no particular order and with no particular logic or categorization. I'm dumping them here because my head won't let me go to bed until I do.

I need to:

  • Take a shower; really really need to do this. Brushing my teeth would be really swell, too.
  • Do lots and lots and lots of my laundry
  • Clean the upstairs bathroom and laundry room
  • Clean my room
  • Clean the kids' room
  • Organize stuff in my office, pay bills, etc.
  • Sew D's pillow for his amputated leg
  • Find the right OS disc and fix my stupid computer.
  • Make the kids an appointment for the pediatrician (Yes, they are now insured...for the next six months.)
  • Email Jay, some people who live inside the computer, probably some other people.
  • Call Jo, Nik, and Kory
  • Finish up with the whole cellphone rigmarole (We decided to get a family plan for me and D to share. New cell phones are a 'comin.)
  • Take check to the bank.
  • Fit the kids in the new carseats and install them in my dad's car
  • Install new signaling system (the thing that tells me when the phone, doorbell, baby monitor, fire alarm goes off. My other one is shot all to hell and I just paid $300 for a new one.)
  • Get closet drawers for the kids room and get my furniture ready to sell.
  • Go talk to DCF about the possibility of another kid and shit or get off the pot about it.
  • If no other kid, organize kid's clothes, baby stuff to sell or give away.
  • Call Healthy start teacher about my dad sitting in next time she comes so she can give him a clue about a few things regarding child development (doesn't work coming from me.)
  • Decide what to do with Black Cat. She needs to stay and get spayed or go...somewhere else?
  • Figure out if its logical for me to pursue medical transcription
  • If not, pursue other ideas and figure out what the hell I'm going to do for money.
  • Help D figure out...oh, his whole life. What to do medically, what to do support wise, etc.
  • Read new curriculum unit for upcoming Sunday school class I'm teaching in March.
  • Visit D probably tomorrow.
  • Sign D's SDS paperwork and mail it for him.
  • Send D's sister a thank you note for things that are nice but secret.
  • Look through books and find a few new activities for the kids to do.
  • Go buy some fresh produce and make up a bunch of food for the kids.
  • Work on getting Aaron to eat more textures.
  • Get back on weight watchers. And lose my pg weight because that excuse has expired.
  • Exercise, either at home or at the snooty place.
  • Take the kids for more walks when its not pouring down rain.
  • Visit the cats over at D's more often. (D is now paying $800 rent so the cats can live in a really nice cat house.)
  • Ice skate. (I've said this every week for the past two years, save the really pg months.)
  • Go to bed earlier. (It's 2:16 am right now.)
  • Get up earlier. (It will help when I have a signaling system so I know when earlier is.)
  • Take the kids to gymboree Tues. and take pictures.
  • Get a haircut.
  • Do the kids' cloth diaper laundry.
  • Clean the litter box(es) and get more litter for both Black Cat and the cats and D's house.
  • Make a list of phone numbers of doctors, etc. to take to D.
  • Make a calendar for myself and start writing down dates, phone numbers, account numbers so I don't have to keep them all in my head.
  • Oh, probably a bunch of other stuff that will come to me as I try to sleep.